A Family’s Heartbreaking Struggle with Rare Hunter Syndrome
April 19, 2011 1 Comment
By Sara Lee Kessler
Jeff and Deena Leider, an Elmwood Park couple learned last December that their two boys, Jason and Justin, have a storage disease called hunter syndrome. They have the inability to break down sugar enzymes in certain parts of their bodies. Hunter syndrome, which only affects boys, wreaks havoc on the body.
Our hearts are with them! Took a little looking, but I think I found their website where you can learn more about the two brothers, and offer a donation.
http://www.letthembelittletrustfund.com/3/donate.htm